A LITTLE HELP
Room for your questions.
Frequently asked questions about the idea, our plans, and the conversations behind Room to Say.
Room to Say is an appointment companion in development, inspired by the experience of living with a long-term condition.
For questions or help with Room to Say, email support@roomtosay.org. Please avoid including sensitive health information in your first message. This address is not an urgent-care service.
Frequently asked questions
What are you building?
Room to Say is an appointment-preparation app in development to help people organise what they want to explain, remember, and ask their healthcare team.
Why did you start?
My parents taught me to prepare questions and notes after I was diagnosed with ankylosing spondylitis at seventeen. I want to offer a little help to people learning that habit for themselves. — Max, founder
Is it only for arthritis?
Arthritis is where my own story begins. People with different long-term conditions and appointments may also find preparation useful. The beta will help us understand how well the design fits different experiences.
Is it for parents and carers?
Parents’ and carers’ perspectives are part of the intended direction. We’ll explain which caring workflows the beta supports before inviting people to rely on them.
Does it give medical advice?
No. Its purpose is preparation and communication. Diagnosis and treatment decisions belong in conversations with qualified healthcare professionals.
Is it available, and what does it cost?
The app is in development, with a public beta planned. Dates, supported devices, participation details, and pricing have not yet been announced. We’ll publish confirmed details here.
Does it use AI?
We plan on-device generation of appointment-summary drafts on supported devices, with references to the source notes and editing and review before sharing. A manual brief is planned when AI is unavailable. We’ll confirm what is included in the beta before it opens. AI is intended to organise your recorded information, not add medical interpretation.
Is Room to Say a charity?
Room to Say is an independent project inspired by lived experience. We are not presenting it as a registered charity.
Can I use the preparation prompts now?
Yes. The homepage has three simple prompts you can tick or print. The ticks are temporary and are not saved or sent by this website.
Questions about trust
I already use a notebook. Why would I need this?
A notebook may work well for you. Room to Say is exploring whether a little structure around appointments is useful to some people. Your existing approach can help us understand what the app needs to do well.
Will this be another thing to manage?
Preparation should feel approachable. We want beta feedback on where the app helps and where it creates extra work, so we can understand what needs to change.
Will my doctor have to install it?
The planned experience lets you review preparation on your own screen or export a printable summary, without your doctor needing an app account. We’ll confirm the available sharing options before the beta opens. Clinician accounts and integrations are not being advertised as available.
Will sponsors see my information?
Sponsorship is being explored, and the proposed approach does not offer sponsors access to identifiable health information. Before the beta opens, the privacy policy and funding information will explain actual data recipients and any sponsorship arrangements. The app’s full data handling is still being finalised.
Will AI change what I said?
Summaries may condense or rephrase notes, and AI can make mistakes. The planned flow keeps original notes accessible, links summary points to their sources, and lets you edit and review a draft before sharing. Your wording, uncertainty, and questions should remain distinguishable; this behaviour still needs testing.
Are you speaking for all patients?
No. My own experience is why I started. Other people’s experiences need to help shape the project, including where their needs differ from mine. — Max, founder
Is this replacing clinical care?
No. It is being built to support preparation for conversations with healthcare professionals. It is not a treatment service or an urgent-care route. This website is not monitored for urgent requests; contact your healthcare team or local emergency services as appropriate.
Planned app features
The following describes approved Version 1.0 plans. Implementation and beta testing are still needed; these are not instructions for a released app.
Will I need an account or an internet connection?
Local-first, offline use is planned without a separate Room to Say account or Sign in with Apple. Optional private iCloud sync will use your existing iCloud account and will need connectivity to sync. See our privacy plans.
Will my notes move to a new phone?
Optional private iCloud sync is intended to preserve your care information across device changes, but migration and two-device restoration still need implementation and verification. Sync is not an independent backup. Encrypted export and import are also planned, not yet verified.
Can I lock the app?
Optional Face ID or Touch ID app lock with device-passcode fallback is planned, together with concealed app-switcher previews and discreet notifications and widgets. It will not use a custom app PIN.
Can I organise notes by condition and doctor?
We plan independent doctor and appointment associations and optional condition tags you enter yourself. A note can have no conditions, one, or several. You will be able to explicitly select relevant history for another clinician without copying or reassigning the source note.
Can I revisit past appointments?
We plan all-doctor and doctor-specific histories with attended visits, briefs, questions, and saved answers. Cancelled appointments and appointments whose date has merely passed will not count as attended.
Will AI summaries work on every iPhone?
The planned core app targets iPhone with iOS 17 or later. On-device AI will require a supported device, software version, and language. A manual appointment brief is planned as the fallback, with no cloud AI. Summary drafts will include source references and need your review before sharing.
Which languages will be supported?
Country and language onboarding and broad localisation are planned. Language coverage, including support for AI summaries, has not yet been verified. We’ll confirm beta requirements before invitations open.
Interested in supporting the project?
Read about the partnership opportunities we are exploring.